Talk Fragile X

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Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don’t know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it’s genetic prevalence in individuals lives.

Recent Episodes
  • Q&A Part 1: Fragile X Treatments, Anxiety and more!
    May 8, 2025 – 00:16:17
  • Rare Patient Voice’s Stacey joins Talk FX Host Nicole Smith!
    Mar 23, 2025 – 00:21:06
  • The Raw Realities of Grief & More!
    Mar 14, 2025 – 00:19:54
  • A Fragile X Family’s Diagnosis Journey
    Nov 25, 2024 – 00:34:27
  • An Update on our Fragile X Journey!
    Jul 5, 2024 – 00:21:24
  • An Important Message from Talk Fragile X
    Jul 1, 2024 – 00:21:55
  • Talk Fragile X is Back with News!
    May 31, 2024 – 00:16:46
  • Why Should We Advocate for Inclusion in the Workplace and in the Community?
    Nov 6, 2023 – 00:20:43
  • Special Guest: Rob Snow, Director of the CEO Commission for Disability Employment
    Oct 12, 2023 – 00:55:48
  • Disability Employment Awareness Month 2023
    Oct 5, 2023 – 00:22:06
  • An Update from FRAXA Research Foundation’s Katie Clapp & Holly Roos!
    Aug 12, 2023 – 00:24:39
  • Fragile X Awareness Month & A Suprise Announcement!
    Jun 30, 2023 – 00:27:18
  • Life Update!
    Apr 12, 2023 – 00:27:57
  • The One Where It's The First Episode of 2023!!
    Jan 19, 2023 – 00:17:52
  • The One Where It's The Last Episode of 2022!
    Dec 13, 2022 – 00:20:34
  • It's Disability Employment Awareness Month!
    Oct 26, 2022 – 00:28:14
  • What More Special Needs Families Should Be Talking About! With Special Guest: Ashley Zazueta
    Oct 14, 2022 – 00:59:42
  • Life Update!
    Sep 9, 2022 – 00:21:43
  • A Raw Conversation with Andrea Miller
    Aug 22, 2022 – 01:09:08
  • We Must Do Better!
    Aug 15, 2022 – 00:25:20
  • How do we maintain hope? (Part 1)
    Aug 10, 2022 – 00:25:12
  • Special Guest: Stephanie Hanrahan Blogger & Founder of the Non-Profit Labeled and Loved
    Jul 28, 2022 – 00:36:21
  • Fear & Anxiety Part 2 With Kirsten Fowler
    Jul 15, 2022 – 00:50:56
  • THIS is why inclusion is important!
    Jul 15, 2022 – 00:20:59
  • Fear & Anxiety Part 1
    Jul 8, 2022 – 00:18:35
  • It's Fragile X Awareness Month 2022!
    Jul 1, 2022 – 00:30:21
  • World Fragile X Day with Special Guests: Katie Clapp & Holly Roos with FRAXA Research Foundation
    May 23, 2022 – 00:28:16
  • A Conversation with Kirsten Fowler, Author of Family, Faith & Fragile X
    May 16, 2022 – 00:40:21
  • Exciting News for The Fragile X Community!!
    Apr 18, 2022 – 00:22:41
  • Special Guest: Kate Swenson Author of Forever Boy: A Mother’s Memoir of Autism and Finding Joy
    Apr 11, 2022 – 00:26:33
  • Autism Awareness Month
    Apr 5, 2022 – 00:24:05
  • Another Fragile X Diagnosis Story with The Knudson Five family!
    Mar 23, 2022 – 00:41:33
  • Prioritizing Self-Care in Your Life
    Mar 14, 2022 – 00:22:52
  • Advocacy Day 2022 is here!!
    Feb 22, 2022 – 00:22:14
  • Preparing your Fragile X child for Employment
    Feb 9, 2022 – 00:44:43
  • A raw conversation with family about Fragile X Syndrome
    Jan 24, 2022 – 00:47:51
  • How FRAXA Research Foundation is keeping hope alive for a cure for Fragile X!
    Jan 18, 2022 – 00:50:27
  • My Fragile X Diagnosis Story with Special Guest: My Husband Moe Smith!
    Jan 10, 2022 – 00:46:22
  • Preparing for Doctors Appointments
    Dec 21, 2021 – 00:21:28
  • Transition from Grade School to Adulthood: Part 2!
    Nov 29, 2021 – 00:30:33
  • Giving Tuesday!
    Nov 24, 2021 – 00:11:34
  • Why Advocate?
    Nov 17, 2021 – 00:16:52
  • Transition from Grade School to Adulthood
    Oct 1, 2021 – 00:21:07
  • We’re back! With Special Guest: Dr. Randi Hagerman
    Sep 28, 2021 – 00:43:58
  • World Fragile X Day
    Jun 3, 2021 – 00:26:46
  • Special Guest: Brandy - Two boys with Full-Mutation Fragile X Syndrome
    Feb 25, 2021 – 00:38:07
  • Special Guest: Katie Clapp (President & Co-Founder of FRAXA Research Foundation)
    Feb 13, 2021 – 00:30:50
  • ADVOCACY DAY 2021!
    Jan 14, 2021 – 00:10:47
  • Approaches to Handling Aggressive Behavior & Discipline
    Jan 9, 2021 – 00:44:06
  • What Has Fragile X Taught You??
    Jan 3, 2021 – 00:35:47
Recent Reviews
  • AH&W
    Grateful
    Talk Fragile X is an extremely beneficial podcast for anyone wanting to know more about Fragile X! Nicole has crafted these episodes so well with a fantastic variety of guests. As a mom with a new diagnosis walking into the fragile x world not knowing where to turn - listening to the podcast has helped me understand the uniquenesses of this disability and has made me feel less alone. Thankful for the time and passion Nicole puts into this amazing resource.
  • BreeaSTexas
    Fragile X
    Great podcast!! I have two FMFX boys and this podcast is so supportive and encouraging! I’m so glad I found it!! -Breea S from Texas
  • Cathy Ann B
    So informative!!
    This podcast is a great help! All the speakers have a wealth of knowledge! It can really help you get through some of your difficult issues!
  • coliee11
    Really enjoying Talk FX!!
    I’m a Fragile X Full-Mutation Carrier and since discovering Talk FX Podcast I have been listening to every episode!! It is so nice to know that there’s a resource out there like a Podcast for the Fragile X Community!
  • FXMomma
    Talk FX
    This has been such a helpful podcast by hearing similar journeys as mine. An absolute relief to know I’m not alone and so many have paved the road ahead of me. For that I’m forever grateful.
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